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    President:: Elisha Chin
    We are volunteers raising funds and awareness for a treatment and ultimately a cure for Huntington disease. While this promising research is ongoing, we try to improve the lives of families affected by HD.

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    Southern Alberta Resource Centre
    Karl Lottes, MA, RSW

    102,  5636 Burbank Crescent SE, Calgary Alberta T2H 1Z6
    Westech Building

    Telephone: 403-532-0609
    Cell: 403-801-3459
    Fax: 403- 532-3952

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    HD research news.  In plain language.  Written by scientists. For the global HD community.

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Research

Research News

HD Buzz is a website featuring HD research news written in plain language by scientists for the global HD community.

Clinical Trials

Project AWARE
This survey is an initiative of HD researchers and community members working together to analyze ways to improve HD patients’ and families’ awareness, willingness and ability to participate in clinical research and to gain knowledge on the design of future clinical trials and observational studies.

Movement Disorders Clinic at the University of Calgary
The Movement Disorders Clinic serves a population of about 2 million from Southern Alberta, Eastern British Columbia, and Western Saskatchewan.  We conduct active research trials on movement disorders and regularly publish in leading medical journals. Our research includes: Parkinson’s Disease, Huntington’s Disease and Cervical Dystonia.

Huntington Study Group
HSG is a non-profit group of clinical investigators from medical centers in the United States, Canada, Europe, Australia, New Zealand and South America experienced in the care of patients and families affected by Huntington disease and dedicated to clinical research of this hereditary disorder.

Huntington Society of Canada
This page discusses some of the questions you may have when making decisions about clinical trial participation.

HD Trials
HDTrials.org has been created to enable clinical trial participation.

Huntington’s Disease Drug Works

DNA & Tissue Donation

Researchers use DNA (blood) and tissue (brain) samples in conjunction with clinical information (symptoms) to better understand HD.  This knowledge is improving diagnoses, helping to develop treatments and is essential to finding the cure for HD.

Huntington Disease BioBank at UBC
The HD BioBank collects blood, brain and tissue samples from  both affected and unaffected individuals in HD families.

Harvard Brain Bank
A short video from National Geographic.

Research Organizations

CHDI Foundation
CHDI’s goal is to increase the understanding of Huntington’s disease and to hasten the development of therapies.  We collaborate with academic and industrial scientists throughout the world.

Canadian Institutes of Health Research
CIHR is the Government of Canada’s agency responsible for funding health research in Canada.

Canadian Universities

Hotchkiss Brain Institute at the University of Calgary
The mission of the HBI is to be a centre of excellence in neuroscience and mental health research, translating discoveries into innovative health care solutions.

UBC Centre for Molecular Medicine and Therapeutics
CMMT researchers have made tremendous strides in finding new ways to fight this disease. In 1999, CMMT researcher Dr. Hayden and his laboratory was the first to develop a mouse model for Huntington’s Disease, which displays the behaviours that correspond to the human version of the disease. With over a decade of research dedicated to the illness and numerous discoveries, CMMT has truly become a leader in Huntington’s Disease research in Canada, firmly committed to finding a cure.

McMaster University
Our laboratory is interested in how proteins move throughout the cell’s organelles in humans.  We have successfully implemented and developed new tools to look at how proteins move within live cells.

Other

Stem Cell Therapeutics – 2009
Alberta Council of Technologies

MIT’s Brains on Brains

Gladstone Institute of Neurological Disease at the University of California, San Francisco.

Basal Ganglia Disorders Program (BAGADILICO) at Lund University, Sweden

2 Responses

  1. […] Sabine also emphasizes the importance of taking part in clinical trials as a method to accelerate the discovery of treatments.  Further information on clinical research can be found on our research page. […]

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