• Enter your email address to subscribe to this blog and receive notifications of new posts by email.

    Join 37 other followers

  • Chapter

    President:: Elisha Chin
    We are volunteers raising funds and awareness for a treatment and ultimately a cure for Huntington disease. While this promising research is ongoing, we try to improve the lives of families affected by HD.

    Check out our Wish List.


    We also work closely with HSC's Resource Centre Director.

  • Resource Centre

    Southern Alberta Resource Centre
    Karl Lottes, MA, RSW

    102,  5636 Burbank Crescent SE, Calgary Alberta T2H 1Z6
    Westech Building

    Telephone: 403-532-0609
    Cell: 403-801-3459
    Fax: 403- 532-3952

  • Huntington Society of Canada


  • HD Buzz

    HD research news.  In plain language.  Written by scientists. For the global HD community.

  • Meta

  • Advertisements

What is HD?

Huntington disease is a genetic disorder. About one in every 10,000 Canadians has HD, but one in every 1,000 are touched by HD whether at risk, as a caregiver, family member or friend. The HD gene is dominant, which means that each child born to a parent with Huntington disease has a 50% chance of sharing the same fate.

The symptoms of HD include:

• emotional turmoil (depression, apathy, obsessive behaviour)

• mental loss (inability to focus, think and recall, make decisions)

• physical deterioration (weight loss, involuntary movements, diminished coordination, inability to walk, talk,  swallow)

The disease leads to complete incapacitation and, eventually, death.

At the moment there are no treatments that will slow down or stop the disease in humans. But hope for a meaningful treatment has never been more real. In recent years, basic research has dramatically increased our knowledge of HD. Various promising treatment strategies are now in the drug discovery pipeline. More than ever, now is the time to step up the fight against HD.

source:  Huntington Society of Canada.

Understanding Huntington Disease.  A Resource for Families
From the Huntington Society of Canada

The Huntington’s Disease Outreach Project for Education, at Stanford
HOPES is a student-run project at Stanford University dedicated to making scientific information about Huntington’s disease (HD) more readily accessible to patients and the public. Our goal is to survey the rapidly growing scientific and clinical literature on Huntington’s disease, and to present this information in a coherent, reliable web resource.

“On Chorea” by George Huntington, M.D.

Originally appeared in The Medical and Surgical Reporter: A Weekly Journal (Philadelphia: S.W. Butler), vol. 26, no. 15 (April 13, 1872), pp. 317–321.  (You may need to select Manual Download to open the article)

Huntington’s Disease
HD info from the U.S. National Institute of Neurological Disorders and Stroke, one of the National Institutes of Health.

Resources for Huntington Disease from National Center for Biotechnology Information

National Health Service (U.K.) info on Huntington disease