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  • Chapter

    President:: Elisha Chin
    We are volunteers raising funds and awareness for a treatment and ultimately a cure for Huntington disease. While this promising research is ongoing, we try to improve the lives of families affected by HD.

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    We also work closely with HSC's Resource Centre Director.

  • Resource Centre

    Southern Alberta Resource Centre
    Karl Lottes, MA, RSW

    102,  5636 Burbank Crescent SE, Calgary Alberta T2H 1Z6
    Westech Building

    Telephone: 403-532-0609
    Cell: 403-801-3459
    Fax: 403- 532-3952

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    HD research news.  In plain language.  Written by scientists. For the global HD community.

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Caregiving

HSC Southern Alberta Resource Centre

As a caregiver, you are not alone.  Contact the Resource Centre for free personal and confidential support.

Additional resources:

Huntington Society of Canada publications

Understanding Huntington Disease
A Resource for Families

Understanding Behaviour in Huntington Disease
A practical guide for individuals families and professionals coping with HD

Living Life to the Fullest:  Families Share their Ideas
A resource of strategies for caring for an individual with Huntington’s.  Created for families by families

A Caregiver’s Handbook for Advanced-Stage Huntington Disease

A Physician’s Guide to the Management of Huntington Disease

Coping with the death of a loved one and with other losses related to Huntington disease

Other HD specific resources

Caring for People with Huntington’s Disease
Guide by the University of Kansas

Huntington Disease
American Speech-Language-Hearing Association

Fun

Access 2 Entertainment™ Card
The Access 2 Entertainment™ Card allows either free or significantly discounted admission for a support person accompanying a person with a disability.  There is a long and growing list of participating movie theatres and other entertainment venues on the website.  The program is administered by the Easter Seals of Canada.  HSC’s Resource Centre Director is an Authorized Health Care Provider and will sign your application if required.

Calgary

Family Caregiver Centre
The Family Caregiver Centre was developed in response to needs identified by family caregivers.  It is an initiative of the Calgary Health Region in partnership with the Calgary Health Trust.

Often caregivers have difficulty finding the right information to help them with their particular situation.  The FCC provides accurate, up-to-date information about community resources and provides assistance in accessing those resources.  It offers information, education and supportive counselling to family/friend caregivers.  They also work with individuals and community organizations to enhance their capacity to support these caregivers.

Father Lacombe Care Centre Caregiver Support Group
Our Caregiver Support Group can assist you with everyday concerns such as:

Coping with stress
Health issues of the older adult
Understanding Dementia, including Alzheimer Disease
How to access community resources
Strategies to cope with memory loss
Personal Directives legislation
Other topics related to care giving

We offer information sharing, companionship and support in a caring, supportive environment facilitated by a Social Worker and Registered Nurse.  The group is open to non-paid caregivers of the community who have care giving issues or concerns.  There are no membership fees.  (Note that this is a Catholic organization, but care is inclusive and non-denominational.)

Alzheimer Society of Calgary – Family Education Series
The Family Education Series is a comprehensive training program designed specifically to meet the caregiving needs of the family caregiver.  Network with other caregivers in a compassionate, supportive environment as you learn more about Alzheimer’s disease and other dementias.  These workshops, based on a person-centred philosophy of care, support friends and family members by providing information about dementia, practical strategies for caregiving and planning for the future.

Alberta

Living in Alberta – Caregivers
Government of Alberta listing of resources for caregivers.

Saying Farewell

A Guide to Assist You with the Death and Dying Process from the Alberta Government

Alberta Caregivers Association
The Alberta Caregivers Association is a registered charitable organization.  Our sole mandate is the well-being of the family caregiver.  To that end we offer information, education, support and advocacy for the benefit of family caregivers.

Canada & Canadian Online

Being a Caregiver
Government of Canada caregiver resources and information.

Safe Medicines for Seniors:  A Guide for Caregivers

From the Canadian Pharmacists Association.  A caregiver can be a friend, relative or neighbour who helps someone with daily living or health-related activities. If you help someone with medicine, take someone to doctor appointments, pick up prescriptions or check on someone on a regular basis, you are a caregiver.  This guide is for anyone helping or taking care of a senior in any way.

Caregiver Connect
Online resource from the Victorian Order of Nurses with contributions by Alberta Health Services, Alzheimer Knowledge Exchange, Canadian Caregiver Coalition, Canadian Hospice & Palliative Care Association, Caregivers Association of BC, Caregivers Nova Scotia, CSSS Cavendish, Family Caregiver Centre, Francophone Women’s Alliance, Health Canada, Health Nexus, Human Resources and Social Development Canada, Ontario Ministry of Health & Long-Term Care, Public Health Agency Canada, Saskatoon Caregiver Information Centre, Seniors Resource Centre of Newfoundland and Labrador, University of Calgary, University of Ottawa, Veterans’ Affairs Canada, VON Canada, VON Hamilton, VON Sudbury, Waterloo Institute for Health Informatics Research, Young Carers Initiative

The Canadian Virtual Hospice
The Canadian Virtual Hospice provides support and personalized information about palliative and end-of-life care, loss and bereavement to patients, family members, health care providers, and educators. Virtual Hospice is staffed by a team of health experts who provide confidential answers to visitors’ questions. The Canadian Health Libraries Association has ranked Virtual Hospice as one of the best health websites in Canada.

International

Carers Direct (UK)
Information, advice and support for carers.

Carers Australia
Carers Australia works continually to build awareness of carers’ needs and represent their interests through our research, policy submissions, publications and advocacy. We work actively to identify and research emerging issues, gather data to support our arguments aimed at promoting the long-term interests of carers across Australia, and seek opportunities to represent carers in meetings with politicians and policy makers, and through a variety of committees and other avenues.

Family Caregiver Alliance (USA)
Founded in 1977, Family Caregiver Alliance was the first community-based nonprofit organization in the country to address the needs of families and friends providing long-term care at home. Long recognized as a pioneer in health services, FCA now offers programs at national, state and local levels to support and sustain caregivers.

Well Spouse Association™ (USA)
A nonprofit membership organization that advocates for and addresses the needs of individuals caring for a chronically ill and/or disabled spouse/partner.  We offer peer-to-peer support and educate health care professionals and the general public about the special challenges and unique issues “well” spouses face every day.