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  • Chapter

    President:: Elisha Chin
    We are volunteers raising funds and awareness for a treatment and ultimately a cure for Huntington disease. While this promising research is ongoing, we try to improve the lives of families affected by HD.

    Check out our Wish List.

             

    We also work closely with HSC's Resource Centre Director.

  • Resource Centre

    Southern Alberta Resource Centre
    Karl Lottes, MA, RSW

    102,  5636 Burbank Crescent SE, Calgary Alberta T2H 1Z6
    Westech Building

    Telephone: 403-532-0609
    Cell: 403-801-3459
    Fax: 403- 532-3952

  • Huntington Society of Canada

            

  • HD Buzz

    HD research news.  In plain language.  Written by scientists. For the global HD community.

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HD Organizations

Huntington Society of Canada

National Office

Young People Affected by HD

Atlantic Canada

British Columbia

Manitoba

Toronto

World HD Organizations

Huntington Study Group
HSG is a non-profit group of clinical investigators from medical centers in the United States, Canada, Europe, Australia, New Zealand and South America experienced in the care of patients and families affected by Huntington disease and dedicated to clinical research of this hereditary disorder.

HD Trials
HDTrials.org has been created to enable clinical trial participation.

Hereditary Disease Foundation
HDF aims to cure genetic illness by supporting basic biomedical research.  The HDF was started by Dr. Milton Wexler in 1968 when his wife was diagnosed with Huntington’s disease.   The Hereditary Disease Foundation played a key role in the discovery of the HD gene, which was localized in 1983 and isolated in 1993. The HDF recruited and supported more than 100 scientists worldwide who worked together as the Huntington’s Disease Collaborative Research Group in a ten-year search to capture the gene.

Huntington Disease Society of America
HDSA is a US-based national non-profit voluntary health agency dedicated to finding a cure for Huntington’s Disease.  They provide vital support, information and educational services to improve the lives of those affected by HD, offer resources and guidance for HD families through our national network of volunteer-based chapters and affiliates as well as through our HDSA Centers of Excellence for Family Services and promote and support research to find a cure for HD.

International Huntington Association
IHA is a federation of national voluntary health agencies that share common concern for individuals with Huntington’s Disease and their families. Each agency promotes lay and professional education, individual and family support, psycho-social, clinical and biomedical research, and ethical and legal considerations related to Huntington’s Disease in its respective country.  In 1974, the first international meeting took place when the founders of the Canadian HD Society (Ralph Walker) and of the British HD Society (Mauveen Jones) attended the annual meeting of the American HD Society.  This meeting was followed by the first meeting together with the conference of the Research Group in the Netherlands in 1977 organised by the Dutch Huntington Society the “Vereniging van Huntington”, where representatives of six countries were present.  Today, nearly 60 countries are involved with the Association.

European Huntington Disease Network

What is the European HD Network about?

  • The European HD Network should provide a platform for professionals and people affected by HD and their relatives to facilitate working together throughout Europe
  • The European HD Network should facilitate natural history studies and interventional trials meeting high standards (‘Good Clinical Practice’ = GCP) thus helping on the road towards a cure of HD
  • The European HD Network should be a true network in that all participants involved can take a lead and propose, conduct and publish studies

HD support groups and organizations around the world
From the International Huntington Association.

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