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  • Chapter

    President:: Elisha Chin
    We are volunteers raising funds and awareness for a treatment and ultimately a cure for Huntington disease. While this promising research is ongoing, we try to improve the lives of families affected by HD.

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    We also work closely with HSC's Resource Centre Director.

  • Resource Centre

    Southern Alberta Resource Centre
    Karl Lottes, MA, RSW

    102,  5636 Burbank Crescent SE, Calgary Alberta T2H 1Z6
    Westech Building

    Telephone: 403-532-0609
    Cell: 403-801-3459
    Fax: 403- 532-3952

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Health & Advocacy Organizations

Neurological Health

Neurological Health Charities Canada
NHCC is a collective of organizations that represent people with chronic, often progressive, neurological and/or neuromuscular diseases, disorders, conditions and injuries (brain disorders) in Canada. The NHCC’s role is to provide leadership, evaluating and advancing new opportunities for collaboration specific to advocacy, education and research projects,related to brain health.

NHCC Mission: To improve the quality of life for all persons with chronic brain disorders, and their caregivers, by elevating brain health to the top of government agendas; increasing awareness and influencing government decisionmakers regarding brain health; and, ensuring that research, prevention, treatments and supports for those living with chronic brain conditions are universally accessible and fully funded.

Canadian Neurological Sciences Federation
The CNSF mission is to enhance the care of patients with diseases of the nervous system through education, advocacy and improved methods of diagnosis, treatment and rehabilitation.

Mental Health

Canadian Mental Health Association – Alberta Division
The Canadian Mental Health Association is a nation-wide, charitable organization that promotes the mental health of all and supports the resilience and recovery of people experiencing mental illness.

Alberta Mental Health Patient Advocate Office
The Mental Health Patient Advocate is legislated to protect patient rights and investigate complaints. The Patient Advocate is not part of a provincial health authority, hospital, clinic or treatment team. The Patient Advocate acts independently and reports directly to the Minister of Health and Wellness.

Canadian Alliance on Mental Illness and Mental Health
Established in 1998, the Canadian Alliance on Mental Illness and Mental Health (CAMIMH) is an alliance of mental health organizations comprised of health care providers, as well as the mentally ill and their families. CAMIMH’s mandate is to ensure that mental health is placed on the national agenda so that persons with a lived experience of mental illness and their families receive appropriate access to care and support.

Movement Disorders

The Canadian Movement Disorder Group
CMDG Goals and Objectives:

  • To support a network of Movement Disorder Clinics across Canada to provide the appropriate facilities to treat patients with  movement disorders, and to conduct clinical research trials in movement disorder  patients.
  • To encourage and/or perform basic science research into the causes and treatment of movement disorders.
  • To provide education to health care professionals during and after their training programs about movement disorders: their diagnosis and  management.
  • To provide educational programs for patients, care givers, the general public, and the media about movement disorders and their treatment.
  • To assist in the formation of regional and national support  groups for patients with movement disorders.
  • To use the CMDG’s influence to ensure quality, ethical, and timely CME programs are available as required to educate Canadian physicians  regarding new advances in the treatment of movement disorders.

WE MOVE
Worldwide Education and Awareness for Movement Disorders

Disabilities

Premier’s Council on the Status of Persons with Disabilities
The Premier’s Council was established in 1988 as an advisory body to the provincial government. The Premier’s Council aims to improve the lives of persons with disabilities by listening to issues of the disability community and communicating these issues to government. The Premier’s Council represents persons with disabilities from across Alberta and is inclusive with respect to age and type of disability.

Alberta Committee of Citizens with Disabilities
Alberta’s Grassroots, Cross-Disability Organization.  The Alberta Committee of Citizens with Disabilities is a consumer-directed organization that actively promotes full participation in society for Albertans with disabilities.

Active Living Alliance for Canadians with a Disability
The Active Living Alliance for Canadians with a Disability (ALACD) promotes, supports and enables Canadians with disabilities to lead active, healthy lives.

Abilities Canada
This website is an opportunity for people with disabilities and the broader community to engage in dialogue around issues that matter to all of us. INSPIRE – INFORM – EMPOWER.

Rare Disorders

Canadian Organization for Rare Disorders
CORD is Canada’s national network for organizations representing all those with rare disorders. CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders. CORD works with governments, researchers, clinicians and industry to promote research, diagnosis, treatment and services for all rare disorders in Canada.  1 in 12 Canadians has a rare disorder. Many others are affected or at risk but remain undiagnosed and unaware. CORD provides information to individuals, and links to other rare disorder support groups and organizations.  CORD represents the orphan disorders community in the development of Canadian Orphan Drug Policy, including the proposed Expensive Drugs for Rare Disorders program within the National Pharmaceutical Strategy.  CORD is working to promote state-of-the-art Newborn Screening in all provinces and territories. CORD is working to ensure Canada’s Clinical Trials Registry works effectively for those with rare disorders. CORD is committed to increasing access to genetic screening and genetic counseling for all rare disorders.

Responsible Genetics

GE3LS: Genomics and Society
GE3LS stands for genomics and its related ethical, economic, environmental, legal and social aspects. GE3LS research complements genomics projects by addressing questions that lie at the interface between science and society.

Genetic Alliance (USA)
Genetic Alliance is the world’s leading nonprofit health advocacy organization committed to transforming health through genetics and promoting an environment of openness centered on the health of individuals, families, and communities.  Genetic Alliance’s network includes more than 1,000 disease-specific advocacy organizations as well as thousands of universities, private companies, government agencies, and public policy organizations. The network is a dynamic and growing open space for shared resources, creative tools, and innovative programs.

Council for Responsible Genetics (USA)
The Council for Responsible Genetics fosters public debate about the social, ethical and environmental implications of genetic technologies.

End of Life

The Quality End-of-Life Care Coalition of Canada
The QELCCC is a coalition of 30 national organizations concerned about quality end-of-life care for all Canadians.  The cCalition believes that all Canadians have the right to quality end-of-life care that allows them to die with dignity, free of pain, surrounded by their loved ones, in a setting of their choice.  The Coalition believes that to achieve quality end-of-life care for all Canadians there must be a well funded, sustainable national strategy for hospice palliative and end-of-life care.  It is the mission of the Quality End-of-Life Care Coalition to work together in partnership to achieve this goal.

Healthy Living

Canada’s Physical Activity Guide to Healthy Active Living
A guide to help you make wise choices about physical activity. Choices that will improve your health, help prevent disease, and allow you to get the most out of life.

Healthy Alberta
Healthy U was developed as a public information and education campaign to support and encourage Albertans to lead healthier lifestyles by providing them with access to information on healthy eating and active living.

Seniors

Calgary Seniors’ Resource Society
CSRS provides outreach, information and referral, escorted transportation, telephone reassurance, friendly visiting as well as other programs for seniors.

Kerby Centre
for the 55 plus

Seniors Safety
Seniors can face many difficulties as they grow older. Canada Safety Council provides safety tips to help in the aging process, and what seniors can do to make their home free of safety hazards.

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