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  • Chapter

    President:: Elisha Chin
    We are volunteers raising funds and awareness for a treatment and ultimately a cure for Huntington disease. While this promising research is ongoing, we try to improve the lives of families affected by HD.

    Check out our Wish List.

             

    We also work closely with HSC's Resource Centre Director.

  • Resource Centre

    Southern Alberta Resource Centre
    Karl Lottes, MA, RSW

    102,  5636 Burbank Crescent SE, Calgary Alberta T2H 1Z6
    Westech Building

    Telephone: 403-532-0609
    Cell: 403-801-3459
    Fax: 403- 532-3952

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2012 11 09 & 10 – HSC National Conference

Register now for the Huntington Society’s National Conference.

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2012/04/25 – Chapter Volunteer Meeting – Open Invite

A reminder that the next volunteer meeting is this week:

  • Wednesday, April 25
  • 6 – 7:30 p.m.
  • Calgary Co-op Midtown Market
    1130 11th Ave SW.

There is a free parking lot located at the Co-op.  Once you walk into the building you want to go to the left side of the store, near the front there is a set of stairs.  Go up the stairs, you will see the meeting space on the right hand side.  There is no outside food allowed so if you are hungry please feel free to buy something from Co-op and bring it to the meeting.

Some topics on the agenda:

Past Events

  • A Night to Flourish – event recap

Review of Annual Fundraising Budget approved at March meeting

Upcoming Events

  • Hope Run
  • Scotiabank Marathon
  • Golf Tournament
  • Yoga in the Park
  • May Awareness Month

2012/06/11 – Huntington Golf Tournament

Join us for another amazing golf event on June 11th at the Earl Grey Golf Club.  Sponsorship opportunities also available.

June 11th at the Earl Grey Golf Club
11:00am – Practice area open
11:30am-12:45pm – Lunch
1:00pm- Shotgun start
5:00pm -Reception – Cocktails and stand up buffet

Spots to fill:
1 single that can join a threesome $300

If you are interested or have friends that are interested please call
Jacob at 403.214.2806

Further information:

Jacob Hendriks
403.214.2806

2012/05/27 – Team HD in the Scotiabank Charity Marathon

Team HD in the Scotiabank Charity Marathon

May 27, early morning to early afternoon, see http://www.calgarymarathon.com/ for specific locations

Team HD is in the Scotiabank Charity Marathon again for our second time.  Last year we were able to raise $12,800 and this year we hope to raise $20,000 while also increasing the size of our team to raise awareness.  If you want to be part of our team but don’t like running, no problem.  There are various distances in this event – 5km walk or run, 10km run, half marathon and full marathon.

If you don’t want to participate but can help us reach our goal please go to https://secure.e2rm.com/registrant/LocationHome.aspx?EventID=84754&LangPref=en-CA&locationID=84777&Referrer=direct%2fnone to make a secure online pledge.  If you prefer cash or cheque, please still use that website and contact Melissa Lingard for dropping off the donation.

Contact Person – Melissa Lingard – lingard.mel@gmail.com or 403-903-5259

We are definitely looking for sponsors so we can reach our $20,000 goal.  We are also looking for more people to join our team.  When you join our team you will be getting a technical t-shirt with our Team HD logo on it.

2012/06/16 – 2012 HOPE Walk/Run for Huntington disease.

Join us for the fourth annual HOPE Walk/Run fundraiser on June 16th.

Participate:

Volunteer:

Now

Assist with planning.

June 14    4-8 pm

Hand out race packages.

June 15    12-8 pm

Hand out race packages.

June 16    Morning

Assist with the smooth running of the event.

Sponsor/donate:

  • Event sponsor
  • T-shirt sponsor
  • Door prizes
  • Items for participant race bags

Contact

Arlene 403-249-4258

darowan@shaw.ca

2012/04/18 – Caregiver Support Group – third Wednesdays

HD Caregiver Support Group
Southern Alberta Resource Centre
Huntington Society of Canada

The Purpose of this group:

  • To provide education and resources about Huntington Disease.
  • To discuss strategies to support a loved one with HD when they experience physical, emotional and social changes that they cannot discuss or are reluctant to acknowledge.
  • To reflect about changes and identify personal strengths and resiliencies.  Often caregivers get so busy ‘caring’ that they cannot talk about events and changes.  This is a place to do that.
  • To help you and your loved one to develop a social support network, breaking down isolation, another very common pattern in HD.
  • To look at self-care strategies for caregivers.

Given the varying needs of participants, discussion topics vary according to group interests.

Please note this group is exclusively for caregivers.

Caregivers’ are family members of someone with a diagnosis of Huntington Disease.  This includes spouses, siblings, adult children and close friends with whom your loved one has regular contact.

If you are a caregiver, please consider attending as a gift to yourself.  Not only do you deserve it….. you need it!!

  • When: Every third Wednesday of the month, 10:30 a.m. to noon
    Please call or email to confirm the next meeting date.
  • Where: Resource Centre Office: 102 5636 Burbank Crescent SE Calgary, AB T2H 1Z6
  • Facilitator: Karl Lottes MA Registered Social Worker, Resource Centre Director

Further information

Karl Lottes, MA Registered Social Worker
403.532.0609
klottes@huntingtonsociety.ca

General information about Huntington Disease:  www.curehd.wordpress.com and www.huntingtonsociety.ca

2012/03/29 – HD Day Group

HD Day Group

This group is open to people with HD living in the community or in personal care homes or other supportive living housing.  It is a pilot project and we will review the group over the next few months and determine how it will evolve or continue.

Next meeting:  Thursday, March 29th – 1 to 3 pm

Location:  Southern Alberta Resource Centre office.