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  • Chapter

    President:: Elisha Chin
    We are volunteers raising funds and awareness for a treatment and ultimately a cure for Huntington disease. While this promising research is ongoing, we try to improve the lives of families affected by HD.

    Check out our Wish List.

             

    We also work closely with HSC's Resource Centre Director.

  • Resource Centre

    Southern Alberta Resource Centre
    Karl Lottes, MA, RSW

    102,  5636 Burbank Crescent SE, Calgary Alberta T2H 1Z6
    Westech Building

    Telephone: 403-532-0609
    Cell: 403-801-3459
    Fax: 403- 532-3952

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    HD research news.  In plain language.  Written by scientists. For the global HD community.

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2012/04/25 – Chapter Volunteer Meeting – Open Invite

A reminder that the next volunteer meeting is this week:

  • Wednesday, April 25
  • 6 – 7:30 p.m.
  • Calgary Co-op Midtown Market
    1130 11th Ave SW.

There is a free parking lot located at the Co-op.  Once you walk into the building you want to go to the left side of the store, near the front there is a set of stairs.  Go up the stairs, you will see the meeting space on the right hand side.  There is no outside food allowed so if you are hungry please feel free to buy something from Co-op and bring it to the meeting.

Some topics on the agenda:

Past Events

  • A Night to Flourish – event recap

Review of Annual Fundraising Budget approved at March meeting

Upcoming Events

  • Hope Run
  • Scotiabank Marathon
  • Golf Tournament
  • Yoga in the Park
  • May Awareness Month
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2012/05/27 – Team HD in the Scotiabank Charity Marathon

Team HD in the Scotiabank Charity Marathon

May 27, early morning to early afternoon, see http://www.calgarymarathon.com/ for specific locations

Team HD is in the Scotiabank Charity Marathon again for our second time.  Last year we were able to raise $12,800 and this year we hope to raise $20,000 while also increasing the size of our team to raise awareness.  If you want to be part of our team but don’t like running, no problem.  There are various distances in this event – 5km walk or run, 10km run, half marathon and full marathon.

If you don’t want to participate but can help us reach our goal please go to https://secure.e2rm.com/registrant/LocationHome.aspx?EventID=84754&LangPref=en-CA&locationID=84777&Referrer=direct%2fnone to make a secure online pledge.  If you prefer cash or cheque, please still use that website and contact Melissa Lingard for dropping off the donation.

Contact Person – Melissa Lingard – lingard.mel@gmail.com or 403-903-5259

We are definitely looking for sponsors so we can reach our $20,000 goal.  We are also looking for more people to join our team.  When you join our team you will be getting a technical t-shirt with our Team HD logo on it.

2012/06/16 – 2012 HOPE Walk/Run for Huntington disease.

Join us for the fourth annual HOPE Walk/Run fundraiser on June 16th.

Participate:

Volunteer:

Now

Assist with planning.

June 14    4-8 pm

Hand out race packages.

June 15    12-8 pm

Hand out race packages.

June 16    Morning

Assist with the smooth running of the event.

Sponsor/donate:

  • Event sponsor
  • T-shirt sponsor
  • Door prizes
  • Items for participant race bags

Contact

Arlene 403-249-4258

darowan@shaw.ca

WOW!

What an incredible few months it has been.  While other groups take the summer off, our chapter has been BUSY!  Great success has been achieved raising both awareness and funds.  Congratulations to all involved!

Once our organizers have had a chance to catch their breath, we’ll post more detailed event updates.  In the meantime, here are some highlights…

  • Yesterday was the third annual Hope Walk/Run.  Another stellar event pulled together by the Rowan family and friends.  Arlene and her team put the FUN in FUNdraising for all involved.  As our most family-friendly event, it was great to see all ages represented and having a good time.  Special thanks also to Wendy Comtois for coordinating six teams representing the Hunter family and friends.
  • Last Monday was the inaugural HSC Golf Tournament.   Jacob Hendriks and his business contacts did a magnificent job creating this new event on a short timeline.   Despite a little liquid sunshine, the golfers enjoyed themselves and the event was a financial success.
  •  At the end of May, HSC participated in the Calgary Marathon as an official charity.  Thanks to Melissa Lingard for bringing together an outstanding team of athletes and fundraisers.
  • During May, the chapter also undertook a number of awareness activities including:
    • having May declared as Huntington Disease Awareness Month by the City of Calgary
    • television and radio interviews;
    • blogging and Twittering, and distributing awareness postcards.

Deep gratitude goes out to those brave enough to share their personal stories publicly.  Many families cannot be as open and your personal sacrifice in order to increase awareness is appreciated.

Thank-you to all who organized, participated, volunteered, supported, sponsored, pledged, donated, and contributed in so many ways.  As a volunteer chapter, we rely upon each and every one of you to make a big difference to the families dealing with Huntington disease.

Hope Walk/Run is this Saturday

Event page on this blog.

Running Room race website

AKA Raisin online pledging website

Pledge form to record cash or cheque pledges

Here’s the schedule:

Thursday June 16, 2011 4 – 8 pm Race package pickup Running Room Glenmore Landing 1600-90 Ave. SW, Calgary
Friday June 17, 2011 noon – 8 pm Race package pickup Running Room Glenmore Landing 1600-90 Ave. SW, Calgary
Saturday June 18, 2011 8:45 am  Check-in Snowy Owl Picnic Site North Glenmore Park Calgary
9:30 am 8 km run
9:40 am 5 km run & walk