• Enter your email address to subscribe to this blog and receive notifications of new posts by email.

    Join 37 other followers

  • Chapter

    President:: Elisha Chin
    We are volunteers raising funds and awareness for a treatment and ultimately a cure for Huntington disease. While this promising research is ongoing, we try to improve the lives of families affected by HD.

    Check out our Wish List.


    We also work closely with HSC's Resource Centre Director.

  • Resource Centre

    Southern Alberta Resource Centre
    Karl Lottes, MA, RSW

    102,  5636 Burbank Crescent SE, Calgary Alberta T2H 1Z6
    Westech Building

    Telephone: 403-532-0609
    Cell: 403-801-3459
    Fax: 403- 532-3952

  • Huntington Society of Canada


  • HD Buzz

    HD research news.  In plain language.  Written by scientists. For the global HD community.

  • Meta

  • Advertisements

HSC National Conference News

Toronto is hosting this year’s HSC National Conference.  If you are not attending, follow along on social media:

Twitter: Web:
#HSCTO2012 Huntington Society of Canada National Conference, Toronto 2012


Young People Affected by HD Day at HSC National Conference 2012
@HuntingtonSC Huntington Society of Canada
@CureHDCalgary HSC Southern Alberta Chapter
@HDBuzzFeed HD Buzz
@YPAby_HD Young People Affected by HD
@HDYOFeed HD Youth Organization
@Huntingtons_Doc Do You Really Want to Know? documentary film
@GeneticFairness Canadian Coalition for Genetic Fairness

Canadian Coalition for Genetic Fairness: Who has perfect genes?

From iPolitics.ca:

Canada requires a genetic non-discrimination strategy to ensure genetic data is used properly without fear of repercussion. The Canadian Coalition for Genetic Fairness (CCGF) will work to win support for a strategy that would prevent insurers and employers from inducing applicants to take genetic tests and from receiving genetic information or family histories, for the purposes of assessing the liability of the applicant, based on imputed or perceived disability.

Federal and provincial privacy and human rights legislation is inadequate — it does not address the concept of “future disability,” or prevent discrimination in the first place. Rather, it offers remedies after discrimination has occurred; but it takes years and a major effort, and the fear of discrimination prevents victims from stepping forward to be knowledgeable about their own health, take preventative actions and treatments (e.g. personalized medicine) and participate in research opportunities. And genetic discrimination is happening to Canadians. In 2009, a University of British Columbia study showed that insurance companies, employers and other organizations are discriminating against individuals with a family history of Huntington’s disease.

Read the full article:  http://ipolitics.ca/2011/06/06/canadian-coalition-for-genetic-fairness-who-has-perfect-genes/