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  • Chapter

    President:: Elisha Chin
    We are volunteers raising funds and awareness for a treatment and ultimately a cure for Huntington disease. While this promising research is ongoing, we try to improve the lives of families affected by HD.

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    We also work closely with HSC's Resource Centre Director.

  • Resource Centre

    Southern Alberta Resource Centre
    Karl Lottes, MA, RSW

    102,  5636 Burbank Crescent SE, Calgary Alberta T2H 1Z6
    Westech Building

    Telephone: 403-532-0609
    Cell: 403-801-3459
    Fax: 403- 532-3952

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Day Program upcoming meetings

Day Program for People affected by HD and their family members/caregivers

  • Thursday September 27th
  • Thursday October 25th
  • Thursday November 22nd
  • Thursday January 3rd 2013

All run 130 pm to 330 pm.  Contact Karl Lottes at the Resource Centre to see if this program is suitable for you.

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Caregiver Support Group upcoming meetings

Caregiver Support Group meeting dates for the remainder of 2012:

  • Wednesday October 17th 1030 am to noon
  • Thursday  November 15th 1030 to noon
  • Wednesday December 19th 1030 am to noon

Further details.

2012 11 09 & 10 – HSC National Conference

Register now for the Huntington Society’s National Conference.

2012/04/18 – Caregiver Support Group – third Wednesdays

HD Caregiver Support Group
Southern Alberta Resource Centre
Huntington Society of Canada

The Purpose of this group:

  • To provide education and resources about Huntington Disease.
  • To discuss strategies to support a loved one with HD when they experience physical, emotional and social changes that they cannot discuss or are reluctant to acknowledge.
  • To reflect about changes and identify personal strengths and resiliencies.  Often caregivers get so busy ‘caring’ that they cannot talk about events and changes.  This is a place to do that.
  • To help you and your loved one to develop a social support network, breaking down isolation, another very common pattern in HD.
  • To look at self-care strategies for caregivers.

Given the varying needs of participants, discussion topics vary according to group interests.

Please note this group is exclusively for caregivers.

Caregivers’ are family members of someone with a diagnosis of Huntington Disease.  This includes spouses, siblings, adult children and close friends with whom your loved one has regular contact.

If you are a caregiver, please consider attending as a gift to yourself.  Not only do you deserve it….. you need it!!

  • When: Every third Wednesday of the month, 10:30 a.m. to noon
    Please call or email to confirm the next meeting date.
  • Where: Resource Centre Office: 102 5636 Burbank Crescent SE Calgary, AB T2H 1Z6
  • Facilitator: Karl Lottes MA Registered Social Worker, Resource Centre Director

Further information

Karl Lottes, MA Registered Social Worker
403.532.0609
klottes@huntingtonsociety.ca

General information about Huntington Disease:  www.curehd.wordpress.com and www.huntingtonsociety.ca

2012/03/29 – HD Day Group

HD Day Group

This group is open to people with HD living in the community or in personal care homes or other supportive living housing.  It is a pilot project and we will review the group over the next few months and determine how it will evolve or continue.

Next meeting:  Thursday, March 29th – 1 to 3 pm

Location:  Southern Alberta Resource Centre office.

2011/08/18 – Community Consultation on Affordable Housing

You are invited by the Accessible and Affordable Housing Working Group of the Accessible Housing Society  to a community consultation promoting secondary suites as a housing option for persons with disabilities.

August 18, 2011

1:30 – 3:30 p.m.

CNIB

15 Colonel Baker Place NE, Calgary

RSVP 403-242-6672 ext 123

The Accessible and Affordable Housing Working Group was created to function as a catalyst for change, to educate, and to strategize on how our Calgary communities can best address the needs for adequate, appropriate, accessible and affordable housing. The working group is a diverse mix of people that includes individuals with lived experience; professionals involved in civic, social service and housing issues; representatives from the private sector; and people from the community at large – all dedicated to the expansion of affordable and accessible housing in our Calgary communities.

2011/08/16 – HDSA Caregiver’s Corner webinar invite

As there are some caregivers that are not attending the Caregiver Group here, I thought it would be good to make it available to people generally.

The Huntington’s Disease Society of America invites you to attend a new Caregiver’s Corner webinar on TUESDAY, AUGUST 16 at noon EDT.  (10:00 a.m. Calgary time)

The August Caregiver’s Corner discusses examples of crisis situations reported by HD families and caregivers and introduces de-escalation strategies. Participants will learn to identify cues for common problem behaviors, including irritability and aggression. They will also learn practical strategies to address and de-escalate crisis situations, with a focus on maintaining safety.

The webinar will be presented by Arik Johnson, PsyD. Dr. Johnson is a licensed clinical psychologist and works with the HDSA Center of Excellence at UCLA. He presented several workshops at the HDSA 26th Annual Convention in Bloomington, MN, and has spoken about behavioral issues in HD at several regional symposiums. Dr. Johnson is also involved with his local chapter governance and recently joined the HDSA Board of Trustees. The webinar will run one hour with time at the end for questions.

Caregiver’s Corner is designed to provide information, resources and support for caregivers so they are better able to face the daily challenges of living with HD.

If you cannot join us on Tuesday, you can still view this presentation at your leisure by visiting the HDSA web site (www.hdsa.org) approximately one week after the live webcast.   A link in the Frequently Used Shortcuts section of the HDSA home page will take you to the webinar.

Participating in the Webinar is very easy. All you will have to do is go to the link you receive after you register. If this is your first Webinar, we recommend that you log on five minutes before the start of the Webinar as it may take a few minutes for the process to complete.

This webinar series is made possible by an educational grant from Lundbeck.

Title: “HDSA Caregiver’s Corner” – Crisis Situations & De-Escalation Strategies

Date: TUESDAY, AUGUST 16, 2011

Time: NOON – 1:00 PM EDT

Register now by clicking the link below:

https://www2.gotomeeting.com/register/114008058

After registering you will receive a confirmation email containing information about joining the Webinar.

System Requirements

PC-based attendees

Required: Windows(R) 2000, XP Home, XP Pro, 2003 Server, Vista

Macintosh(R)-based attendees

Required: Mac OS(R) X 10.4 (Tiger(R)) or newer