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    President:: Elisha Chin
    We are volunteers raising funds and awareness for a treatment and ultimately a cure for Huntington disease. While this promising research is ongoing, we try to improve the lives of families affected by HD.

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    We also work closely with HSC's Resource Centre Director.

  • Resource Centre

    Southern Alberta Resource Centre
    Karl Lottes, MA, RSW

    102,  5636 Burbank Crescent SE, Calgary Alberta T2H 1Z6
    Westech Building

    Telephone: 403-532-0609
    Cell: 403-801-3459
    Fax: 403- 532-3952

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Access 2 Entertainment companion card – update

As mentioned in an earlier post, Easter Seals Canada manages the Access 2 Entertainment (TM) Card.  This is a fabulous program for those of us who love movies, attractions and recreational opportunities.

If, as the result of a permanent disability, you are unable to participate without a companion, the Access 2 Entertainment Card provides admission for that companion which is either free or nearly free (maximum $3.)  The person with the disability pays regular admission.

This post  is a summary of information believed to be accurate as of today.  However, qualifications, rules and participating venues can change at any time, so always check the www.access2card.ca website for official information.

Participating Theatres and Attractions:

The card is valid at a large number of movie theatres and attractions.  The list of participating organizations is maintained at www.access2card.ca/venues/  Current listings:

Movie theatres in Alberta

  • Cineplex
  •             Odeon, Galaxy, Famous Players, SilverCity, Colossus, Coliseum
  • Empire Theatres
  • Landmark Cinemas
  • Rainbow Cinemas
  • Magic Lantern Cinemas
  • AMC Theatres

Attractions in Alberta:

  • Aero Space Museum of Calgary
  • Art Gallery of Alberta
  • Calgary Zoo
  • Canada’s Sports Hall of Fame
  • Canadian Grain Elevator Discover Centre
  • Canmore Museum & Geoscience Centre
  • Danish Canadian National Museum
  • Edmonton Valley Zoo
  • Esplanade Arts and Heritage Centre
  • Fort Edmonton Park
  • Fort McMurray Historical Society
  • Fort Whoop-Up National Historic Site
  • Frank Slide Interpretive Centre
  • Galt Museum & Archives
  • Jasper-Yellowhead Museum & Archives
  • John Janzen Nature Centre
  • La Crete Mennonite Heritage Village
  • Lougheed House
  • Morinville Musuem
  • Muttart Conservatory
  • Nose Creek Valley Museum
  • Peace River Museum, Archives & Mackenzie Centre
  • Royal Tyrrell Museum
  • Sundre Museum & World of Wildlife
  • TELUS world of Science-Edmonton
  • The Fort Museum of the North West Mounted Police and First Nations Interpretive Centre
  • Ukrainian Cultural Heritage Village
  • Westlock Pioneer Museum
  • Wild Rapids
  • YouthLink Calgary

Application:

Download the application form at www.access2card.ca and follow the instructions.  There is a $20 fee to acquire, replace or renew the Access 2 Entertainment Card which is valid for 5 years.

Medical qualification:

The application form requires that the applicant must be a client of an authorizing health care professional/service provider (see application for list) who attests that:

  1. The client has a permanent disability.
  2. As a result of the disability, the client requires the assistance of an attendant at movie theatres or entertainment venues.

For clients of the Huntington Society’s Southern Alberta Resource Centre, Karl Lottes is qualified to complete the Registered Health Care Provider Information required on the application.  He can be reached at 403.532.0609.

Good to know:

If you intend to also apply for the Easter Seals’ Disability Travel Card (TM) mentioned in an earlier post, have your health care professional complete both forms at the same time.  If you already have a CNIB ID card or an Easter Seals Disability Travel Card, a photocopy of either one can be submitted as authorization in lieu of completing the  Registered Health Care Provider Information section.

The Disability Travel Card is a similar program operated by Easter Seals through which participating Canadian coach (bus) operators and Via Rail offer reduced fares for companions accompanying persons with disabilities who cannot travel independently.

International Day of Persons with Disabilities

Today is International Day of Persons with Disabilities.  This year, the United Nations has declared the theme to be: Removing barriers to create an inclusive and accessible society for all.

“Over one billion people, or approximately 15 per cent of the world’s population, live with some form of disability.

Persons with disabilities, “the world’s largest minority”, often face barriers to participation in all aspects of society. Barriers can take a variety of forms, including those relating to the physical environment or to information and communications technology, or those resulting from legislation or policy, or from societal attitudes or discrimination. The result is that persons with disabilities do not have equal access to society or services, including education, employment, health care, transportation, political participation or justice.”

Read more

HSC National Conference News

Toronto is hosting this year’s HSC National Conference.  If you are not attending, follow along on social media:

Twitter: Web:
#HSCTO2012 Huntington Society of Canada National Conference, Toronto 2012
#YPAHDDAY2012

 

Young People Affected by HD Day at HSC National Conference 2012
@HuntingtonSC Huntington Society of Canada
@CureHDCalgary HSC Southern Alberta Chapter
@HDBuzzFeed HD Buzz
@YPAby_HD Young People Affected by HD
@HDYOFeed HD Youth Organization
@Huntingtons_Doc Do You Really Want to Know? documentary film
@GeneticFairness Canadian Coalition for Genetic Fairness

Amaryllis sales in downtown Calgary this October

Once again, Brookfield Office Properties and Beta Sigma Phi are coming together to support HSC.  Brookfield has generously donated space in two downtown Calgary office towers and the sorority sisters are volunteering their time and enthusiasm to sell amaryllis kits.

Free quilt draw.  For these sale days only, every amaryllis kit bought will entitle the purchaser to an entry into a draw for one of two quilts.  A draw will take place at the end of the second day at each building.  The quilts have been kindly donated by Deborah Domin at Loopy D’s Quilting & Longarm Studio and Beta Sigma Phi members who participate in the studio’s Linda’s Ladies Quilting Guild.

Credit and debit card payments will now be accepted.

October 16 & 17, 2012 – Suncor Energy Centre

10 a.m. to 2 p.m. at the bottom of the escalators
Quilt draw:  2 p.m. on October 17
150 – 6 Avenue S.W. (formerly called PetroCanada Tower)

October 23 & 24, 2012 – Fifth Avenue Place

10 a.m. to 2 p.m. at the bottom of the escalators
Quilt draw:  2 p.m. on October 24
420 – 2nd Street S.W. (formerly called Esso Plaza)

CREB Charitable Foundation $25,000 for 25 standings update

The Huntington Society’s Alberta Camp Health, Hope, and Happiness (Camp He-Ho-Ha) has been nominated by REALTOR® Jorina McDowell and is in the running against 44 other charities for 5 gifts of $25,000 in the category of Vulnerable Populations.

This morning, the Huntington Society of Canada is ranked 36th with 50 votes.  As of this moment, we need 307 more votes to move into 5th place.  If we finish in the top 5 on October 21, we will earn one of the $25,000 prizes.  We can do it if we really want it!

Don’t forget to remind your REALTOR®  friends and associates to vote daily for HSC’s Camp He-Ho-Ha.  Each CREB member has a minimum of 10 votes per day.

Voting link:   http://cf25for25.creb.com/nominee.php?id=193

Help The Grant Family earn $100,000 for HSC

The CFL and Scotiabank Game Changers is giving $100,000 to the charity that gets the most votes across Canada.  Help The Grant Family support the Huntington Society of Canada by voting for them at this link: https://www.scotiabankgamechangers.com/nomination/?nominationid=291  One vote per day per email address.

Help us earn $25,000 from the Calgary Real Estate Board Charitable Foundation

2012 is the 25th anniversary of CREB® Charitable Foundation. To celebrate this anniversary, the Foundation has launched the $25,000 for 25 program. On behalf of Calgary and area REALTORS®, 25 gifts of $25,000 will be selected by its members.

The Huntington Society’s Alberta Camp Health, Hope, and Happiness (Camp He-Ho-Ha) has been nominated by REALTOR® Jorina McDowell and is in the running against 44 other charities for 5 gifts of $25,000 in the category of Vulnerable Populations.

Each CREB® member and staff in good standing has a minimum of 10 votes per day, which they can allocate in a block or individually.  Voting began September 24 and ends at noon on October 21st.

Please encourage all the REALTORS®  you and your contacts know to vote for the Huntington Society of Canada at this link:  http://cf25for25.creb.com/nominee.php?id=193

Every vote counts.  Making it into the top 5 will be a tough battle as the current rankings (after 1.5 days of voting) show:

Rank

Votes

 
1

1,180

5

188

35

30

Huntington Society of Canada