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Canadian Coalition for Genetic Fairness: Who has perfect genes?

From iPolitics.ca:

Canada requires a genetic non-discrimination strategy to ensure genetic data is used properly without fear of repercussion. The Canadian Coalition for Genetic Fairness (CCGF) will work to win support for a strategy that would prevent insurers and employers from inducing applicants to take genetic tests and from receiving genetic information or family histories, for the purposes of assessing the liability of the applicant, based on imputed or perceived disability.

Federal and provincial privacy and human rights legislation is inadequate — it does not address the concept of “future disability,” or prevent discrimination in the first place. Rather, it offers remedies after discrimination has occurred; but it takes years and a major effort, and the fear of discrimination prevents victims from stepping forward to be knowledgeable about their own health, take preventative actions and treatments (e.g. personalized medicine) and participate in research opportunities. And genetic discrimination is happening to Canadians. In 2009, a University of British Columbia study showed that insurance companies, employers and other organizations are discriminating against individuals with a family history of Huntington’s disease.

Read the full article:  http://ipolitics.ca/2011/06/06/canadian-coalition-for-genetic-fairness-who-has-perfect-genes/

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