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Stigma, history, and Huntington’s disease by Alice Wexler

From The Lancet, Volume 376, Issue 9734, Pages 18 – 19, 3 July 2010

Until my mother was diagnosed with Huntington’s disease—a hereditary degenerative neurological and psychiatric disorder characterised by chorea, cognitive impairment, and emotional disturbance—she never mentioned that her father and three brothers had all died with this disease. Perhaps that missing family history was why I became a historian. I wanted to understand my mother’s shame, and the origins of her devastating silence.

Read the full article:  http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(10)60957-9/fulltext