Running for Huntington disease We meet a Calgary woman who used the Calgary marathon to raise awareness about Huntington disease. http://www.cbc.ca/eyeopener/episode/2011/06/01/running-for-huntington-disease/
Filed under: fundraiser, genetics | Tagged: CBC Eyeopener, CBC radio, family, genetic testing, HD, Huntington disease, Melissa Lingard | Leave a Comment »
Huntington disease affects all members of a family. Sometimes forgotten in the chaos are the young people. They often face burdens unimaginable to their peers, including caring for family members at various stages of HD. A recent issue of Canadian publication The Family Caregiver newsmagazine contained an excellent article entitled Young carer movement is on [...]
Filed under: caregiving, youth | Tagged: caregiving, family, HD, Huntington disease, The Family Caregiver, young carer, youth | Leave a Comment »
Danton Spina, a filmmaker with HD in his family needs your vote for a grant from Pepsi to help him create a film about HD. And don’t forget to ask your family and friends to do the same. One of biggest obstacles faced by the HD community is awareness. Unlike most other diseases, we are [...]
Filed under: tv and film | Tagged: Dana Spina, family, film, filmmaker, HD, Huntington disease, Pepsi Refresh Project, vote | Leave a Comment »
The Family Caregiver Centre has extended an invitation to a discussion on Grief and Caregiving. It is open to both family caregivers and those who support family caregivers. Understanding grief and loss. How to support yourself in your role as family caregivers.
Filed under: events, government, resources, support group | Tagged: Alberta Health Services, family, Family Caregiver Centre, grief, Kathy Bach Paterson, loss | 1 Comment »
We welcome caregivers as well as people affected by HD and family members impacted by HD.
Filed under: Huntington Society, support group | Tagged: coping strategies, family, Huntington disease, Huntington Society of Canada, support group | Leave a Comment »
