The Oktoberfest fundraiser is this Saturday - Saturday Oct 17th at the Kensington Legion.
If you are able to help out, contact Dee Cunningham at (403) 592-1465
From Canada.com…
End discriminatory insurance practice of forced genetic-history exposure: Coalition
By Norma Greenaway
Canwest News Service
October 11, 2009
From the National Post…
Coalition takes aim at genetic ‘discrimination’
By Norma Greenaway
Canwest News Service
October 13, 2009
From the Vancouver Province…
Outlaw discrimination based on genetics: Coalition
By Norma Greenaway
Canwest News Service
October 4, 2009
Each of the two public events are designed to engage Albertans in a patient-focused dialogue to demystify stem cell therapies. The forums have been designed to resolve three objectives:
1) to increase public and patient awareness of stem cell therapies, its implications on health care delivery and their potential in preventing and treating degenerative diseases,
2) to establish Alberta’s bio-tech sector as a world leader in the development of stem cell technologies, and
3) to prepare Alberta for the early delivery of stem cell therapy.
BACKGROUND
Because of an aging population and a reduction in infant mortality (due to innovations in medicine and public health), society is faced with an ever-increasing number of people suffering degenerative diseases such as Alzheimer’s, Parkinson’s, Huntington’s, Arthritis, etc.
In fact, the treatment of degenerative diseases resulting from aging is currently consuming 80% of health care budgets of most developed nations.
But while the costs of treatment are increasing, they pale in comparison with the costs associated with the lost contributions and productivity of patients and their caregivers.
According to recent studies (Milken 2007), the combined cost of caregivers’ unpaid labour and the lost productivity of those suffering chronic degenerative conditions outweighed treatment expenditures FOUR FOLD in the U.S. during 2003!
By focusing solely on treatment costs, strategies for short term cost cutting such as health care rationing have little effect. Why? Such strategies merely focus on “managing” degenerative disease rather than rehabilitation, which would reduce the devastating costs of lost productivity.
Fortunately, solutions are in sight.
Bio-technology, by creating therapies that employ stem cells found in one’s own body, will be able to treat degenerative disease and restore damaged and aged tissues, cells and organs.
Caution is warranted, however. While stem cell therapies have the potential to transform health care and the features of aging, as we know them, overly optimistic promises – too much, too fast – may impede their adoption.
The two public forums being held in Calgary and Edmonton are designed to address the realities underlying these technologies, identify impediments to their commercialization and contribute to the health and the economy of Alberta.
* * *
The Forums in Calgary and Edmonton will be broadcast live on the internet
Calgary November 25: http://www.abctech.ca/stem-cell-therapies-calgary-november-25/?id=136
Edmonton November 26: http://www.abctech.ca/stem-cell-therapies-edmonton-november-26/?id=136
Fancy dress optional - Prize for best Oktoberfest costume!
Special Keg Station!
There will be a 50/50 draw and live auction
When:
Saturday October 17th, 2009
7:00pm to 1:00am
7:00pm - Doors open
8:30pm - Live music by The Ad Hoc Band begins
9:00pm - German fare served
Where:
Kensington Legion
264 Royal Canadian Legion
1910 Kensington Road NW, Calgary, AB
Why:
A benefit for Huntington Society of Canada and Brain Tumour Foundation of Canada
How Much:
Tickets: $20
Alcoholic beverages are $4
Soft drinks FREE
To purchase tickets, please contact
Dee Cunningham
403-592-1465
cunningham_deirdre@hotmail.com
poster
Watch University of Toronto researcher Dr. Andres Lozano’s May 7, 2009 lecture to the McGovern Institute for Brain Research at MIT entitled Deep Brain Stimulation Therapy for Movement Disorders
Global TV will feature a two-hour premiere of the sixth season of HOUSE on Monday September 21st. Depending on your location, it may be on at 7, 8 or 9 p.m.
Olivia Wilde plays a character most often referred to as Thirteen. In season 4 the audience learned that Dr. Remy Hadley’s mother died of Huntington disease. From that point forward, there has been an ongoing storyline as she handles the impacts HD may have on her own life.
Two of the actors, Olivia Wilde and Peter Jacobson have also appeared in a May 2008 HD Awareness Campaign for the Huntington Disease Society of America (HDSA.)
If you miss an episode, they are posted on Global’s website on Wednesdays.
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Some other media portrayals of HD can be found listed here.
A movie, entitled 50/50 by Ted Bogosian, Barry Levinson and Tom Fontana has been introduced by Danny DeVito on YouTube. Unfortunately the video used to be limited to U.S. viewers only and now CStar.com and Jersey Films do not appear to have a web presence.
Recently individuals have been fundraising on behalf of the Huntington’s Research Foundation. This organization has no affiliation with the Huntington Society of Canada or any of its chapters. See the following notice Donations to Huntington Disease: New Group Not Linked to National Charity
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If you need assistance making informed choices about your charitable giving, here are some credible sources of tips and information:
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The Huntington Society of Canada has been a Registered Charity since 1975. This can be verified on Canada Revenue Agency’s website.
